COLLECTING DATA ON YOUR ILLNESS. I argued here that there should be comprehensive collection of data on treatment for every tumor in the national tumor registry, including all off-label uses of drugs in cancer treatments. I suspect that one reason that clinical studies have a short half life is because of necessity they deal with small samples. We now have the computing power to collect massive amounts of data. I believe that if you have a serious illness, your treatment should become a data point in evaluating treatments.
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